Super Nash: X-Rays

Monday, June 20, 2011

X-Rays

PFFD
Type 1b

These are the X-rays of Nash's femur. You can tell that the right side is definitely shorter than the left. The top of his right femur is almost at a right angle and his left one is normal. The hip joint on the right is flat as opposed to the left, which is rounded. That will also have to be corrected. That is what the Superhip surgery will do. (That's the first surgery we will be doing next fall and the reason we're going to Dr. Paley) I hope this gives a better idea as to what is going on.

Nash is doing great with his shoe! He's walking along the funiture already so we're very happy he's getting used to it. I'll try to get some video of it and post it...its super cute :)

2 comments:

Kaly EttenJune 22, 2011 at 5:54 PM
Thank you for the update!! We love and are thinking of you all! xoxo
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stinaJune 23, 2011 at 8:44 AM
my little hero
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About PFFD

Proximal Femoral Focal Deficiency (PFFD) or Congenital Femoral Deficiency (CFD) is a rare, non-hereditary, birth defect that affects the hip bone and the proximal, or top of the femur. 1 in every 40,000 live births are affected by this condition. (per Nash's doctor, Dr. Paley) Nash's right femur is half the size of his left. His knee is affected as well. If we chose to do nothing, his right leg would be 10 inches shorter than his left when he is full grown. Nash just completed his first surgery..the 'Superhip' surgery in West Palm Beach, Florida. Dr. Dror Paley at the Paley Limb Lengthening Institue, is one of 2 doctors who perform this surgery in the United States. He not only created the surgery, but he is, by far, the most experienced. We plan on starting the lengthening process next summer, which will require us to be in Florida for 4 months. We need approx 8cm of bone growth so we will try to get 1mm every day. The reason we will stay in Florida is because Nash will have daily Physical Therapy at the Paley Institute. They need to keep a close eye on bone growth and range of motion during the lengthening process.

Nash will go through a minimum of 3 lengthenings in his growing years...at 3yrs, 8yrs, and 12yrs old. (approx) Our goal is to have 2 legs the same length as he goes into his adulthood!

Welcome to our LIFE :)

We really want to express how grateful we are for such wonderful friends and family. The love and support that we have received is amazing. We want to thank you for visiting our blog and hope that if you ever have any questions, feel free to ask. I try to keep the blog updated as much as possible. It's really been a great outlet and a way to let everyone know our progress and milestones. I hope that if you don't know Nash, or have never met him, you get a chance to at some point. He is truely the sweetest boy and his strength is a huge inspiration. We couldn't be more proud of our little man :)

If this is your first visit to the site, it's best to start at the beginning with the "It's a Boy" post. That makes everything easier to understand.

Wishing you Health and Happiness,

Chris, Caroline, Aidan and Nash